Effective Patient and Public Involvement and Engagement (PPIE) in research requires planning and a considered approach. Members of the public (patients, carers, service users and communities) should be included wherever possible, as their input will help research to be more relevant, ethical, and accessible.
The public can be involved at every stage of the research process. The earlier they are included, the greater the impact they can have.
The following diagram has been created by a Public Contributor with lived experience. She is a member of the DATAMIND Super Research Advisory Group and also provides PPIE advice to other research organisations around the country. This diagram was produced with their support, including consultation with other Public Contributors.
It is intended as a visual resource to help researchers consider how they can involve people, and illustrates how these activities align with the research cycle.